We share trusted information about Marfan syndrome and raise funds through our GoFundMe campaign to support the people living with it.
This campaign is built around education and fundraising — sharing accurate information and helping raise money for the cause.
Clear, medically-informed guides on symptoms, diagnosis, and daily life with Marfan syndrome, drawn from publicly available clinical information.
Raising money through our GoFundMe campaign to support people living with Marfan syndrome and the wider community around them.
Marfans Awareness is a grassroots campaign raising awareness and funds for the Marfan syndrome community, working toward becoming a registered nonprofit organization. In the meantime, it's a community effort to help however we can — not a substitute for established organizations doing this work professionally.
Read More About This CampaignEvery donation to our GoFundMe campaign helps support the Marfan community.